I understand my son has gained 3 lbs in 3 months but HE IS NOT EATING FOR 12 HOURS...all day long.
Thanks,
Concerned mom #1783
Seriously, one of our main concerns is Mackinley's blood sugar dropping. We have always been told by the above mentioned doctor that we need to test his blood sugar if he isn't eating for long periods of time. For the last week Mackinley has eaten a handful of corn Chex all day...along with maybe 14 oz of milk/formula. He eats a decent dinner most nights but that is only after a lengthy hit or miss session of "what will he eat tonight?". Pure frustration.
His endo tells us today that he has probably outgrown the risk of low blood sugars...unless he is vomitting. So does that mean we worry less? Not so much.
On the up-side, Mac has responded to his growth hormone therapy AMAZINGLY! He has gone from being in the 6th percentile at 9 months to the 90th percentile at 18 months. Modern medicine I tell ya, it's a blessing.
We have done some reading and have found that the buffer in his growth hormone shot may sting so we are calling our insurance co. tomorrow to see if we have other options. Our nurse today told us that other patients have claimed the same reaction but the drug company denies it of course...insurance companies are paying out their rears for their patients to use their drug. Why ruin a good run? Tami is going to check out our options tomorrow and we may be switching to a different drug company which means a different injection method, hopefully still a pen.
We have several playdates scheduled this week, I hope, and I can't wait to get out of the house after being sick last week. Mackinley doesn't know it but I'm sure he could use some toddler social interaction so I know he will be excited to see Ava and Vaughn, Miles and Graham and Tallulah. I have been terrible at taking pictures the last month so I'm hoping to get some good shots this week...now if I could only find the camera charger.
I always wondered if they would grow out of low blood sugars...something else to ask our Endo next month. How low has his sugars been getting?
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